This intermediate-level course offers essential information to social workers, mental health counselors, marriage and family therapists, psychologists, and advanced practice and psychiatric nurses who work with children with chronic illness and their families. The course reviews psychological factors encountered in clients with such common pediatric diseases and illnesses as asthma, cancer, cystic fibrosis, sickle cell anemia, and diabetes. Participants will learn about the complexities involved in differential diagnosis and assessment for comorbid conditions. The course presents two models of psychosocial adjustment and adaptation to chronic illness—transactional stress and coping (TSC) and disability stress coping (DSC)—and demonstrates how these can be applied to sickle cell disease. The course also explains how psychosocial adjustment to chronic illness affects quality of life and functioning. Risk, resistance, and social–ecological factors are discussed. Individual, family, and group methods of treatment for children and adolescents with chronic illness are described, and particular attention is paid to research outcomes. Psychological management and treatment adherence are discussed in the context of each of the five illnesses. Mechanisms of action, treatment efficacy, and combined treatment approaches are explained. The authors also explore individual, family, provider, and system barriers to treatment.
Buchanan, N. D., Block, R., Smith, A. W., & Tai, E. (2014). Psychosocial barriers and facilitators to clinical trial enrollment and adherence for adolescents with cancer. Pediatrics, 133(Suppl.), S123–S130. doi:10.1542/peds.2014-0122I
Clarke, S., & Calan, R. (2012). The effectiveness of psychosocial interventions designed to improve health-related quality of life (HRQOL) amongst asthmatic children and their families: A systematic review. Quality of Life Research, 21(5), 747–764. Abstract retrieved from http://link.springer.com/article/10.1007/s11136-011-9996-2
Falvo, D. (2014). Medical and psychosocial aspects of chronic illness and disability (5th ed.). Burlington, MA: Jones & Bartlett Learning.
Harris, M. A., Hood, K. K., & Weissberg-Benchell, J. (2014). Teens with diabetes: A clinician’s guide. Alexandria, VA: American Diabetes Association.
Mackner, L. M., Greenley, R. N., Szigethy, E., Herzer, M., Deer, K., & Hommel, K. A. (2013). Psychosocial issues in pediatric inflammatory bowel disease: A clinical report of the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition. Journal of Pediatric Gastroenterology and Nutrition, 56(4), 446–458. doi:10.1097/MPG.0b013e3182841263
Nabors, L. (2014). Information for mental health providers working with children who have chronic illnesses. Shariqah, United Arab Emirates: Bentham Science.
Pinquart, M. (2013). Self-esteem of children and adolescents with chronic illness: A meta-analysis. Child: Care, Health and Development, 39(2), 153–161. Abstract retrieved from http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2214.2012.01397.x/abstract?deniedAccessCustomisedMessage=&userIsAuthenticated=false
Pinquart, M., & Teubert, D. (2012). Academic, physical, and social functioning of children and adolescents with chronic physical illness: A meta-analysis. Journal of Pediatric Psychology, 37(4), 376–389. doi:10.1093/jpepsy/jsr106
Sansom-Daly, U. M., Peate, M., Wakefield, C. E., Bryant, R. A., & Cohn, R. J. (2012). A systematic review of psychological interventions for adolescents and young adults living with chronic illness. Health Psychology, 31(3), 380–393. Abstract retrieved from http://psycnet.apa.org/journals/hea/31/3/380/
Scholten, L., Willemen, A. M., Last, B. F., Maurice-Stam, H., van Dijk, E. M., Ensink, E., . . . Grootenhuis, M. A. (2013). Efficacy of psychosocial group intervention for children with chronic illness and their parents. Pediatrics, 131(4), e1196–e1203. doi:10.1542/peds.2012-2222
Woods, K., Mayes, S., Bartley, E., Fedele, D., & Ryan, J. (2013). An evaluation of psychosocial outcomes for children and adolescents attending a summer camp for youth with chronic illness. Children’s Health Care, 42(1), 85–98. doi:10.1080/02739615.2013.753822